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Posted Feb 15, 2023|Announcement

New Resource: Identification of Usher Syndrome

A new NCDB product on Usher Syndrome, authored by Nancy O’Donnell, Outreach Director at the Usher Syndrome Coalition, is now available on the NCDB website. “Identification of Usher Syndrome: Information and Resources” offers a wealth of information on 

  • The types and characteristics of Usher
  • How Usher is diagnosed
  • The importance of timely referral 
  • National child count data 

Factsheets are also included with information specifically designed for educators, healthcare professionals, and families.

Delayed diagnosis can severely impact a child’s language development, the quality of educational experiences, and the ability of children and families to make informed choices about the future. We hope this resource helps fill the gap in information about Usher syndrome for families and professionals.