Telling your Child's Story

March 2021

Families are the true experts on their children with deaf-blindness.

They know the medical, emotional, and developmental history of their child and understand their communication better than anyone else. As such, families play an important role in compiling and sharing their child’s story. Telling that story well can help ensure that your child’s educational goals are aligned with their abilities and the vision you have for their future. It will also help you be a more effective advocate for your child and family. Parents and other family members can use these resources to help craft a story of a child’s life to share with others.

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Resources

Preparing to Share Your Family’s Story
This guide was created to help parents with a child in an early intervention program give presentations about their child’s successes and challenges, but it can be helpful for anyone thinking about sharing their child’s story as a presentation.
The Power of Telling Your Story
Strategies for how to plan, gather information, and present your child’s story to others in a way that helps advocate for and raise awareness of their needs.
Creating a Vision Portfolio with Students with Multiple Disabilities
This article, by a TVI, describes a project she did with a 4th grade student to create a “vision portfolio” of the child. Included is the final portfolio!
Creating a Student Introduction Portfolio
Learn how to create a “student introduction portfolio,” which can help your child begin to advocate for themselves and help others get to know them better.
Introducing Your Child With Disabilities To a New Teacher
Strategies for crafting a letter introducing your child and family to new teachers, so they can get to know you and your child on a more personal level.

See also, NCDB's info topic Understanding the Child and Sharing What You Know